Moderadores: Pedro Souto, APELA
SESSION II - ALS: Discovery & Development of Drugs
Programa | Program
FRIDAY, APRIL 28
Session I – AMYOTROPHIC LATERAL SCLEROSIS (ALS):
CHALLENGES, LIMITATIONS AND INTERVENTION
09:45-13:00
09:45-10:15 Amyotrophic lateral sclerosis: overview
Mamede de Carvalho, iMM, FMULisboa
10:15-10:45 Advances in ALS scientific research - HOPE FOR ALS Scientific Research Program from SCML
Dora Brites, iMed.ULisboa, FFULisboa
10:45-11:15 "From Bench to Bedside: DLK Inhibition for Neuroprotection in ALS"
Geoffrey Kerchner, Roche/Genentech
11:15-11:45 Coffe Break
11:45-12-15 Ventilation: Options and decision making
Anabela Pinto
12:15-13:00 Molecular and Cellular Motor Neuron Surgery
Nicholas Boulis, Emory University, Department of Neurosurgery
13:00-14:00 Free Lunch
14:00-18:00
Chair: Sofia Crisóstomo, OF
14:00-14:45 Challenges and Opportunities for Drug Development in ALS
Lucie Bruijn, The ALS Association
14:45-15:00 The establishing of the European Organization for professionals and patients with ALS (EUpALS)
Evy Reviers, ALS.beSLA
15:00-15:30 Drug Development for ALS: from hurdles to incentives and Marketing Authorisation
Bruno Sepodes, EMA, FFULisboa
15:30- 16:00 ALS Pipeline Analysis and Market Forecast
Carla Vozone, HOVIONE
16:00-16:30 Coffee Break
16:30-17:00 Preclinical and clinical development
Elsa Branco, NOVARTIS, FMULisboa
17:00-17:30 Risk and Benefit Assessment: basis and regulations
Marina Sousa, NOVARTIS
17:30-18:00 Expected Involvement of patients in medicines development
Beatriz Lima, EUPATI/IMI, FFULisboa
Musical performance – “Insisto não ser tristeza” (Zeca Afonso)
With Francisco Fanhais, Intervention Singer, President of José Afonso Association
SATURDAY, APRIL 29
09:00–13:10
Session III – ALS: RESEARCH AND TECHNOLOGICAL DEVELOPMENT
14:10-16:30
SESSION IV - PATHWAYS, REALITIES AND SOCIAL TRAJECTORIES OF ALS PATIENTS
Chairs: Pedro Souto, APELA
14:10-14:30 Analysis of the riluzole use profile in a Portuguese Hospital Center
Ana Párola, CHLO
14:30-14:50 Contributions of Occupational Therapy: A Different Look at the Difference
Elisabete Roldão, APTO
14:50-15:20 Relevance of a multidisciplinary intervention in people with ALS
João Cabrita and Joana Teresa, APELA
15:20-15:40 Nutritional Support to the ALS patient
Paula Cerqueira, ANF
15:40- 16:00 Enteral feeding by percutaneous endoscopic gastrostomy in ALS
Jorge Fonseca, HGO
16:00-16:30 Coffee break
16:30-17:45 Round-Table: Health and Science
Ana Paula Martins, OF
Miguel Guimarães, OM
Miguel Castanho, FCT
Catarina Oliveira, FM-UC
Jornalist (To be invited)
17:45-18:00 Closing Session
Dora Brites
Adalberto Campos Fernandes (Minister for Health, to be confirmed)
Sexta, 28 de abril
08:00 Abertura do Secretariado
09:30 Sessão de Abertura
Dora Brites, iMed.ULisboa, FFULisboa
Matilde Castro, Diretora da FFULisboa
Pedro Santana Lopes, Provedor da SCML (a confirmar)
08:00 Registration
09:30 Opening Session
Dora Brites, iMed.ULisboa, FFULisboa
Matilde Castro, Dean FFULisboa
Pedro Santana Lopes, Provider of SCML (to be confirmed)
09:45-13:00
Sessão I- ESCLEROSE AMIOTRÓFICA LATERAL (ELA): DESAFIOS, LIMITAÇÕES E INTERVENÇÃO
Moderador: Bruno Sepodes, EMA, FFULisboa
Chair:Bruno Sepodes, EMA, FFULisboa
09:45-10:15 Esclerose amiotrófica lateral: visão geral Mamede de Carvalho, iMM, FMULisboa
10:15-10-45 Avanços na investigação científica da ELA – Programa HOPE FOR ALS da SCML
Dora Brites, iMed.ULisboa, FFULisboa
10:45-11-15 From Bench to Bedside: DLK Inhibition for Neuroprotection in ALS
Geoffrey Kerchner, Roche/Genentech
11:15-11:45 Intervalo para café
11:45-12-15 Ventilação: Opções e tomada de decisão
Anabela Pinto
12:15-13:00 Molecular and Cellular Motor Neuron Surgery
Nicholas Boulis, Emory University Department of Neurosurgery
13:00-14:00 Almoço Livre
14:00-18:00
Sessão II – ELA: DESCOBERTA E DESENVOLVIMENTO DE MEDICAMENTOS
Moderadores: Sofia Crisóstomo, OF
14:00-14:45 Challenges and Opportunities for Drug Development in ALS Lucie Bruijn, The ALS Association
14:45-15:00 The establishing of the European Organization for professionals and patients with ALS (EUpALS)
Evy Reviers, ALS.beSLA
15:00-15:30 Drug Development for ALS: from hurdles to incentives and Marketing Authorisation”
Bruno Sepodes, EMA, FFULisboa
15:30-16:00 ALS Pipeline Analysis and Market Forecast
Carla Vozone, HOVIONE
16:00-16:30 Intervalo para café
16:30-17:00 Desenvolvimento pré-clínico e clínico
Elsa Branco, NOVARTIS, FMULisboa
17:00-17:30 O Risco e o Benefício: a regulamentação e sua origem
Marina Sousa, NOVARTIS
17:30-18:00 Expected Involvement of patients in medicines development
Beatriz Lima, EUPATI/IMI, FFULIsboa
Apontamento Musical – “Insisto não ser tristeza” (Zeca Afonso)
Com Francisco Fanhais, Cantor de Intervenção, Presidente da Associação José Afonso
Sábado, 29 de abril
09:00-10:30 Forum “Tecnologias para Monitorização Psicológica, Comunicação e Interação das pessoas com ELA”
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Long-term non-intrusive monitoring for cognitive and emotional assessment from multi-modal data- João Sanches e José Santos Vítor, ISR/IST
-
As Tecnologias de Apoio à Comunicação das pessoas com ELA: desafios para o futuro- Ana Rita Londral , IMM/IPS/Univ. Zurique
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Usabilidade de Interfaces Cérebro-Computador em contexto clínico- Gabriel Pires, ISR Coimbra/IP Tomar
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Comunicar com ELA: Desafios e práticas na utilização de tecnologias de apoio à comunicação- Filomena Borges, APELA
10:30-11:00 Intervalo para café
11:00-13:10 Ateliers Interativos
I. Exposição interactiva com dispositivos robóticos e tecnologias de apoio à comunicação e movimentação
II. Exposição e Laboratório Aberto
Ana Rita Vaz
Carolina Cunha
Catarina Ezequiel
Marta Barbosa
13:10-14:10 Almoço Livre
09:00–13:10
Sessão III – ELA: PESQUISA E DESENVOLVIMENTO TECNOLÓGICO
Sessão IV - PERCURSOS, REALIDADES E TRAJETÓRIAS DOS DOENTES COM ELA
14:10-16:30
14:10-14:30 Análise do perfil de utilização de riluzol num Centro Hospitalar Português
Ana Párola, CHLO
14:30-14:50 Contributos da Terapia Ocupacional: Um olhar diferente para a diferença
Elisabete Roldão, APTO
14:50-15:20 A importância de uma intervenção multidisciplinar na pessoa com ELA
João Cabrita e Joana Teresa, APELA
15:20-15:40 Suporte Nutricional do doente com ELA
Paula Cerqueira, ANF
15:40-16:00 Nutrição enteral por gastrostomia endoscópica percutânea na ELA
Jorge Fonseca, HGO
16:00-16:30 Intervalo para café
16:30-17:45 Mesa Redonda: Ciência e Saúde
Ana Paula Martins, OF
Miguel Guimarães, OM
Miguel Castanho, FCT
Catarina Oliveira, FM-UC
Jornalista (a convidar)
17:45-18:00 Encerramento
Dora Brites
Adalberto Campos Fernandes (Ministro da Saúde, a confirmar)
09:00-10:30 Forum “Technologies for Psychological Monitoring, Communication and Interaction of people with ALS”
-
Long-term non-intrusive monitoring for cognitive and emotional assessment from multi-modal data- João Sanches e José Santos Vítor, ISR/IST
-
Communication Technologies for people with ALS: challenges for the future- Ana Rita Londral , IMM/IPS/Univ. Zurique
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Usability of Brain-Computer Interfaces in Clinical Context- Gabriel Pires, ISR Coimbra/IP Tomar
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Communicate with ELA: Challenges and practices in the use of communication support technologies- Filomena Borges, APELA
10:30-11:00 Coffee break
11:00-13:10 Interactive Workshops
I. Interactive exhibition with robotic devices and assistive technologies in communication and mobility
II. Open Lab Station
Ana Rita Vaz
Carolina Cunha
Catarina Ezequiel
Marta Barbosa
13:10-14:10 Free Lunch
16:30-18:00
Session V – Convergence, Strategy and Innovation
16:30-18:00
Sessão V – CONVERGÊNCIA, ESTRATÉGIA E INOVAÇÃO
